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SCIENTIFIC LITERATURE · MED

Patient experiences of receiving a diagnosis of Parkinson's disease.

J Neurol · 2018-03-15

DOI: 10.1007/s00415-018-8817-8PMID: 29546451

Open accessresearch-article; Journal ArticleOriginal source ↗

Research overview

The text below is the source article’s original abstract under a verified reuse license. cc by

ObjectiveTo report patients' own experiences of receiving a diagnosis of Parkinson's disease (PD) and to identify factors influencing this experience.MethodsA survey by the European Parkinson's Disease Association in 11 European countries.Results1775 patients with an average age of 69.7 years participated of whom 54% were male. Those living in rural areas reported having waited longer to seek medical help (p ConclusionsThere is a need to improve how the diagnosis of PD is communicated to patients, the opportunity to ask questions soon after diagnosis, and the amount, timing and quality of life information provided, as this is associated with greater satisfaction with the diagnostic process.

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