NeuralCipher Research overview
The text below is the source article’s original abstract under a verified reuse license. cc by
ObjectivesMental health is often compromised over the long course of Parkinson's disease (PD). Yet research on psychological interventions remains scarce and evidence is limited. This comprehensive study adopts a broad lens to understand the real-world experiences of people with Parkinson's (PwP) who have accessed professional psychological support (PPS) often repeatedly.MethodSemi-structured interviews were conducted with 28 PwP, exploring experiences with PPS in the context of PD.ResultsInductive thematic analysis identified four main themes. The first, 1) Invisible inaccessibility, underscores the challenges in accessing PPS. The second 2) Missing the mark, explores the shortcomings of PPS. Theme 3) Empowering elements, highlights helpful PPS components. Theme 4) Reinvention and regrowth, captures the positive impact of PPS.ConclusionOur findings highlight both the challenges and potential transformational power of psychological support in PD. The toll of support-seeking in PD, compounded by an often ineffectual psychotherapeutic experience for PwP is disheartening. Nevertheless, when therapeutic support is truly relevant, it empowers PwP to move beyond an illness-centred mindset towards adaptation and personal growth. Drawing from rich real-world PwP experiences, we provide recommendations for optimising psychological support to improve mental health in PD.
Scientific assessment
Research question
Assess the question within the original study’s scope.
Methods & sample
Check the source article for study design and sample details.
Key findings
An editorially approved findings summary is not yet published for this record.
Limitations
Generalizability, bias and clinical meaning require separate assessment.
Methods, samples and clinical conclusions are not inferred from bibliographic metadata.